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Mast Cell Activation Syndrome / Alpha-Tryptasemia / 'Histamine Intolerance' (X-post Fibromyalgia)
What is mast cell activation syndrome (MCAS)? MCAS is also known as mast cell activation disorder. Mast Cell Activation Syndrome is an immune condition.This is a condition in which mast cells act inappropriately and they excessively release chemicals that result in chronic symptoms. Mast Cell Activation Disorders & Food Series: Part One – The Elimination Diet The Diet / Friday, January 12th, 2018 I want to dedicate a series of posts to the topic of MCAD & food since it is one of the things most of us struggle with, whether we have mastocytosis or mast cell activation syndrome (MCAS).
I was sick. I was diagnosed with fibromyalgia. I had 2 decades of near constant abdominal pain. Like you, I had every test under the sun. Now I'm a lot less sick. Antihistamines helped me. Mast Cell Activation Disorder is something your doctor probably doesn't know about. Mine didn't. It's a brand new syndrome/disorder and it's hard to test for. It's incredibly common. It may effect 1 in 10 to 1 in 20 people. Please check out these links. It may account for some cases of IBS. Doctor Lawrence Afrin, rated in the top 5% of doctors in the country, published a 2017 paper saying that approximately 17% of the population is susceptible to this condition.
A podcast interview with Dr. Lawrence Afrin, the leading specialist in the disease:
An amazing website about mast cell diseases written from the viewpoint of a scientist with the condition.
In depth diet guide: I think the original language is German so it's a bit wonky. There is frequent talk of the 'low histamine diet' FODMAP doesn't work for you but low histamine does? You may have a mast cell disorder
Print this out and give this to your doctor if you want a test, they are frequently done incorrectly: https://tmsforacure.org/tests/
From Wikipedia:
Common symptoms include:
Dermatological
flushing
easy bruising
either a reddish or a pale complexion
itchiness
Cardiovascular
lightheadedness,
dizziness,
presyncope,
syncope
Gastrointestinal
diarrhea,
cramping,
intestinal discomfort
nausea,
vomiting
Swallowing,
throat tightness
Psychological & Neurological
brain fog,
short term memory dysfunction,
difficulty with recalling words headaches,
migraines
Respiratory congestion,
coughing,
wheezing Vision/Eyes ocular discomfort,
conjunctivitis
Constitutional general fatigue and malaise food,
drug, and chemical intolerances (especially fragrances)
sense of being cold all the time
Musculoskeletal osteoporosis and osteopenia (including young patients)
From Wikipedia: Common pharmacological treatments include:
Mast cell stabilizers,[12] including cromolyn sodium and natural product MC stabilizers such as quercetin[14][15]
H1-antihistamines,[12] such as cetirizine or ketotifen H2-antihistamines,[12] such as ranitidine or famotidine Antileukotrienes
[12] such as montelukast or zileuton as well as natural products (e.g., curcumin or St. John's wort extracts) Nonsteroidal anti-inflammatory drugs [11] including aspirin can be very helpful in reducing inflammation in some patients, while others can have dangerous reactions[11]
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